Part Time Wheelchair Users

June 25th, 2016

One thing a lot of part time users feel is that they can walk a little but not more than a meter or two, also for a lot of us it can be hard to keep our energy up making us exhausted fast!

I use a wheelchair part time it has gotten more and more over the years but we expected this, I now always use my wheelchair when out and for standing I use my smart crutches, there are occasions where I can walk, stand or dance (stand and move a little) for a while, this is very painful and I do suffer after, but I do make sure that these occasions are worth it!

This picture sums me up, a wheelchair user, but I have my crutches at the ready for getting up and moving about!

wheelchair and crutches

When we go on days out I use the chair, if I didn’t then I would get over exhausted, I would be in a lot of pain, and would most likely dislocate something, I do often dislocate joints even in the wheelchair, often subluxating my shoulder!

Here is the thing, I will get up out of my chair sometimes, I may really want to see something that I can’t see in the chair (Like my son riding his bike on a trail, for the first time!) I may have some pain that will only be solved by standing and moving, I have been into shops to try on clothes and wondered down the shop a little to look at items, this is often with hubby behind me pushing the wheelchair panicking in case I suddenly need the chair! But it is nice for those few minutes when I am absorbed in shopping and can wonder a very short distance down the shop (about a metre)

There is, especially in the beginning, that thought, that fear, that people will think that I am faking it, from the outside I may look like I am fine, that I can walk, I can dance, why do I need the chair!?

Thing is for now I can still move about a little use crutches to keep me upright, but my time is ticking, this won’t last long, I don’t know how long, so I am making the most of it while I can, even though it is painful!

I take my wheelchair on family days out, if I didn’t I would not make it for even 5 min! and we would never see anything because I am soooo slow! So I take my chair and use it!!

We recently went on a day trip to a country show and everyone walked all day, they had sore feet and were very tired, and I must say how wonderful my family (in-laws) are as they didn’t once say they could do with a push in the chair or that they would like to be where I am, this is because they understand that for me being pushed is painful and exhausting, at the end of the day, we went to the car and I had to move from the chair to the car, it was very painful, my legs really hurt and my neck and shoulders were painful, I needed help, and I cried with the pain, I was thinking that if this was so painful for me in the chair, and I was this exhausted everyone else must be absolutely shattered from walking all day, and they were!

Often strangers make comments about how they wish they had the wheelchair, and the luxury of it, I can see where they are coming from, but what they do not realise is that being in a wheelchair is exhausting and a pain in the bum!

For some of us we have days were we can have some well needed time out of the chair, maybe saved up some energy as much as we can and can get out and do something, like join in with a little dance, limited dance but still feel part of it, and we also have days were we dread even sitting in the thing, or going out in it, the thought just seems too much, knowing that it will be painful.

The alternative is that we stay at home, all the time, we never go out, we don’t see our friends, we do everything on line, from making friends, to shopping, for me it would mean I never get to pick up my children from school and we would never have family days out, and they wouldn’t get to grow into the fantastic human beings that they are.

Just before I got my wheelchair I went to town for the first time in ages, I needed something, so we set out , at the time I had a stick so we parked up, stick in hand and headed toward the shop, I didn’t even get half way and I had complained of pain, my shoulder hurt from using the stick and my back and hips were agony, the shop seemed so far away and I just knew I wouldn’t be able to concentrate on shopping, we had to turn back and come home, this was the moment I realised I needed more help to get about!

Since getting my chair, we have, been to 3 wishes faery fest 3 times, walked out on the moors many times been to zoos, safari parks, went on trains, been to London, I got to go to the kaffe fassett exhibition in bath!! Had a fantastic time,went to Lincoln for a film and exhibition I knitted for! been to the beach, been shopping, get to look at food when buying groceries, been able to go out with the children, been too school assemblies, Sports days! this list just goes on and on and on.

So if you do have a wheelchair, and are worried please do not worry, your life with it will be so much better than without it, people don’t always understand, but there are so many people out there who do! a wheelchair though simple is an amazing thing breathing life back into people!

by Juniper Askew

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